30 Lessons Learned

I thought I would take a moment and share with you some of the important lessons I have learned raising an autistic child. You may want to tuck these away in the ole memory banks so that you can call on them when need be. Here are 30 in no particular order…

Upon Further Review - 2012 Blogging Advent Calendar Day 8

“There is no planet, sun, or star could hold you if you but knew what you are.”

– Ralph Waldo Emerson

I think it is time to do something… Time for a re-evaluation of Bianca’s IEP.

I am NOT looking forward to it.

Until this year, Bianca had always struggled with returning to school. After a few weeks though, she would get adjusted to her routine and settle in. This year, has been tougher for her.

I don’t know if it is the longer school day (she now goes all day as a first grader) or that her classroom got changed and moved to a smaller room, maybe it is just her. At any rate, she is not where we would like her to be at school. She is making some progress, but she is also constantly out of her seat, escaping from the classroom, mouthing stuff before the paras and teachers can get to her and head-butting the staff on a daily basis. Every morning as Bianca leaves, my wife and I place a bet on who gets head-butted and where.

Back to School! or (New Routines: Here We Come!)

Whew… Well… It has been an interesting few weeks. I haven't had time to write much because it is that time of year again...

School is back in session! This of course means lots of things to lots of different people. To my family, the start of school this year means that we have Sofie entering Kindergarten and Bianca going to 1st grade with a whole new set of routines to establish.

M&M’s (Miraculous and Motivating)

With motivation, people can accomplish amazing things. They can lose weight, run a marathon, learn new skills, climb mountains or throw themselves out of planes. Most people find motivation on their own and without the help of others, sometimes they need a gentle push. People get inspired and use that to their advantage to do things that they might not otherwise attempt to do.

For kids on the spectrum, motivators are often found by the parents. They vary as greatly as the individuals on the spectrum themselves. Some have a favorite toy, others a reward system like stickers. Some get rewarded with food like McDonald’s fries or a favorite fruit.

"F" stands for Fool

** A note from Lou: Before Lou's Land, I used to just write Facebook notes for my friends and family to read. After establishing a collection of writings, friends kept suggesting that I start a blog and share my stories. This was one of the first notes I wrote. It took place on Bianca's first day of Pre-K. We still had yet to receive a diagnosis, but we were pretty certain what the situation was. I thought it would be appropriate to share this since school is starting back up. Hope you enjoy.

(11/05/08) - Many of you may not know, but Elsa and I believe that our oldest daughter Bianca is struggling with some developmental delays, and may very well be autistic or on the autism spectrum.

Bianca has been getting Occupational, Developmental, and Speech Therapy for the last year and a half. When she turned three this last Monday, she aged out of her early intervention at home therapy and has now started going to an early intervention pre-school four days a week. She really needs help with her socialization skills and speech. She talks all day, but she doesn't converse with people.

It has been stressful on both Elsa and I as we struggle with the emotions of sending a child that is so young away to a school. Bianca on the other hand... no problems. She cried the first day, but I think that was because she saw the playground and wanted to hit the slide and swings. She rides the bus (full sized... thank goodness) and really enjoys it. I understand from a fellow parent who watched her get off the bus on her first day riding it, that she even got in line with the other kids, held hands and walked into the school together.

Bianca waiting for the bus.

Yesterday, I unpacked her book bag and looked through her folder. As soon as I opened the folder... my heart sank. Emblazoned on the first sheet of paper in the folder was a giant letter "F".

I couldn't believe it! The new therapist failed Bianca on her first session. My blood boiled as I tried to comprehend why in the world they would grade a three year old in the first place. What even quantifies getting an "F" at that age? I actually had to fight the growing lump in my throat and watering of my eyes.

I studied the paper carefully. The instructions were clear, "Point to the object when named."

I looked at the pictures on the paper. There were fingers, the number four, a family, the number five, fruit, a face... none of these items were things too complicated for Bianca to figure out. She loves to label things, and does so all day. HOW COULD SHE FAIL?!?

Then I started thinking... she knows fingers... four.... family... five... fruit... face.

Wait a minute.

Fingers... four... family... five... fruit... face.

How strange that all of these words begin with the same letter.... the letter "F".

She was learning words that began with "F". There was no grade given.

"F" stands for Fool... and I am one of the biggest around.

If you have not already, please take time to watch my videos, "Fixing" Autism and Autism Awareness with Nichole337 and share them with your friends.

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