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Showing posts with label friendship. Show all posts
Showing posts with label friendship. Show all posts

Thursday, June 26, 2014

Marty's Words

Martin DeMaat was an improv teacher at Columbia College and the Artistic Director at Second City Chicago. I took every improve class I could with Marty because he was such an amazing and inspiring person. He genuinely cared and his approach to imrpov was to create as safe a place as possible for the performer. It was a true joy to be instructed by him and his passion for the art form was contagious.

I wrote down in my notebook at the start of my second class with Marty a few things that I noticed he had said at the start of the previous class I took with him as well. Marty said many memorable things, but a couple of things he said have stuck with me to this day.

"You do not have the right to feel inadequate."
"You are pure potential."

Thursday, December 20, 2012

Fireflies - Blogging Advent Calendar Day 19



For Day 19 of the Blogging Advent Calendar I wanted to share this with you…

There is a lot of ugliness going around in regard to autism since the Newtown, CT shooting. I think we could all use this and the message it carries.

I hope you enjoy "Fireflies" by the Jubilee Project.

Tuesday, December 4, 2012

So Long Good Friend - 2012 Blogging Advent Calendar Day 2




It’s inevitable when you buy a pet. You’re supposed to know it in the pet shop: it’s going to end badly. You’re purchasing a small tragedy.” - George Carlin


It is a sad day at the Melgarejo household. While sleeping on the love-seat (where she is not supposed to be) our dog Sadie fell to the ground crying and clearly in distress. She knocked into furniture, knocked over speakers and toys and was hitting her head really hard on the floor and wall until she crumpled up in a twisted heap by the front door. Sofie and Bianca were in the living room too. Bianca was in an opposite corner pretend playing with her Backyardigans, but Sofie was watching TV and saw the whole thing. I told her to go upstairs while I called for my wife for help.

Tuesday, October 30, 2012

Nataly's Letter




In the wake of Ann Coulter’s unapologetic use of the “R-word” I wanted to share a beautiful letter written by Bianca’s friend Nataly.

Nataly is one of the helpers in Bianca’s dance class. She is an incredibly happy, warm, loving, fun young lady… who just also happens to have Down Syndrome. If you knew Nataly, you would understand that her disability is the least remarkable thing about her.

Here is what Nataly wrote on the Voces de Familia de Indiana Facebook Page, a page that was just started by a few Latino special needs parents in Indiana. First is the original in Spanish, and then I have it translated in English.

Thank you Nataly for being a great role model for ALL kids. You are an inspiration and our family is lucky to know you.

Tuesday, May 15, 2012

Walk Now



To better understand somebody, don’t just walk a mile in their shoes… walk three miles by their side.

This was the conclusion I drew last year after participating in my first Walk Now for Autism Speaks event in Chicago. The event moved me so greatly and the people touched me so deeply that it literally changed my life forever.

Autism was no longer a deserted island. There were people out there that lived it and breathed it every day just like I did. There were families that looked just like mine walking the path down Chicago’s beautiful lakefront. Their struggles were our struggles. Autism was not the isolating sentence I thought my family had received, it was quite the opposite.

Sunday, May 29, 2011

A Very Special Friend.

In 1981 we were broke. I mean poor. Government subsidized housing poor. My parents had decided in 1979 that we were going to pack up and move from the north side of Chicago to my dad’s home country of Guatemala. Unfortunately, shortly after we moved to Guatemala City the country fell deep into a civil war and rebellion. Feeling it was no longer safe for his American wife and mixed child, dad sent mom and me back to the States while he stayed behind to tie up loose ends. We lived with my cousins for a while before settling in to the Timberview Apartments.

The whole experience was pretty traumatic and I found myself in Mahomet, Illinois which could not be more different than my Chicago stomping ground of Edgewater or the third world flavor of Guatemala. The air was clean and there were open fields and forests for me to play in. The only real problem was that after living at the apartment complex for a while, I was low on the friend count.

Being a new kid on the block is never fun. You worry if you will fit in and whether or not the kids are going to like you. I made a couple of friends, but was always on the lookout for more when I came across somebody playing whiffle ball and calling the game as he pitched the ball to himself, “Reggie Jackson comes up to the plate. It is a 2-2 count with bases loaded… the pitch” SMACK!!!! I had never seen a whiffle ball get crushed like that. He actually hit it OVER the roof of a two-story apartment complex. Now I grew up a baseball fan and I knew a good player when I saw one, and this guy was GOOD. As he rounded “third” and trotted to “home” he eyed me and asked, “You wanna play?”

“Sure.” I replied
“OK, you pitch.” He said as he picked up his yellow piece of plastic lumber.
“Alright.”

After looking for a while in some trees for the ball, we finally came across it. I took my place on what I believed to be an appropriate distance for the pitching mound and got into my stretch. My opponent cocked the bat back behind his head swinging it back and forth like Gary Sheffield. I had a pretty good arm, and felt confident in my fast ball. I started my windup and threw a heater that whistled that hollow, high-pitched whir that only a properly thrown whiffle ball can make… POW.

I had never experienced a “come-backer” before. There was no time for me to react. No sooner had the ball left my hand that I was laid out on the ground. It was a Charlie Brown moment except that my shoes and socks were still on. My opponent seemed undaunted as he ran as fast as he could for what appeared to be an inside the park homerun.
“You OK?” he said after his home run celebration.
“Yeah… I guess. Man, you hit that ball harder than anybody I have ever seen hit a ball.” I replied as I brushed myself off and inspected my shoulder for welts, bruising or loss of use.
“My name’s Kevin. What’s your name?”
“Luis”
“I love to play baseball, how about you?”
“Yeah, I love playing baseball.”
“I like comic books too, do you like comic books? Batman and Robin are my favorite. I watch the TV show all the time.”
“Yeah, I like comics too. Spiderman is my favorite.”
“Do you wanna play superheroes after we get done playing baseball?”
“Sounds good to me! How about I bat this time?”

And so began one of the most important friendships of my life. I didn’t realize it at the time, but my friendship with Kevin would prepare me for one of the biggest challenges in my life.

My parents had taught me well. They drilled into my head that you respect EVERYBODY, and you treat them as your equal. That is what I did with Kevin. We played ball, we battled “evil-doers” as Kev was fond of saying as if he were narrating the 1960’s Batman TV show, and we explored deep dark jungles and built complex fortresses. We became good friends, close friends.

As I got to know more kids, I would always introduce them to Kevin. If we played sports, I was smart enough to know I wanted Kevin on my team. He was taller than most of us and had a great hook shot to go along with his hitting power. To the credit of the other kids, Kevin was always accepted which as I got older always impressed me. Kids can be cruel about others that are different, and Kevin (although I never thought much of it at the time) was different… he had Down Syndrome.

When you are a kid, three years seems like an eternity. But for those few years at the Timberview Apartments, Kevin and I probably played together almost every day. Unfortunately however, as I aged sadness and a reality set in for me as Kevin’s being “different” started to affect our friendship. It wasn’t that I no longer liked Kevin or enjoyed his company; it was just that I was growing up and my interests were changing but Kev was still… well… Kev. He wanted to play Batman and Robin, and do the things that were fun and adventurous for me at 11, but not so much for me at 14. Add to it the fact that I had to grow up pretty fast when my mom was diagnosed with ovarian cancer, and the rift between what Kevin and I found entertaining grew.

I often thought that life was cruel. Not because Kevin had Down Syndrome, because he was the happiest, sweetest guy I have ever known. What was cruel was that I couldn’t maintain that same level of wonder about the world, the naiveté that would allow me to still play Batman and Robin at the age of 14. Unfortunately for Kevin, there is a huge leap in development for kids between 11 and 14 years of age, and Kevin (who was in his mid-twenties) wasn’t making the leap with me.

We stayed friendly once his family moved away from the Timberview Apartments. My family moved not long after. Kevin’s saint of a mother Esther would bring Kevin over to our house to visit, and we would reminisce about the good old days. Kevin’s eyes would always sparkle when he asked me if I remembered this adventure or that game we played. I am certain that had I been up for it, Kev would have gladly gone outside and picked up right where we left off. The visits became less frequent and then I went away to college, and I believe Kevin and his mom moved out of the area.

Fast forward some 20+ years and we discover that my oldest daughter has Autism Spectrum Disorder. Although Autism is a different condition altogether from Down Syndrome, I feel like my friendship with Kevin prepared me for raising Bianca. I am not afraid of people that are different. I know that they have wonderful things to offer the world, and I am perfectly aware of many of the challenges that can arise when dealing with these beautiful people. I even feel like life is repeating itself because a couple of Bianca’s friends from dance class have Down Syndrome.

I still think of Kevin almost every day. My memories of the times that we shared are still vivid in my mind and I hope they never fade. They were good times, GREAT times. My family was as poor as we would ever be, and yet I was so happy.

Any weather was good weather for baseball with Kevin

Tough times are never so tough when you have a good friend to play ball with.





If you have not already, please take time to watch my videos, "Fixing" Autism and Autism Awareness with Nichole337 and share them with your friends.



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