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Showing posts with label acceptance. Show all posts
Showing posts with label acceptance. Show all posts

Thursday, June 26, 2014

Marty's Words

Martin DeMaat was an improv teacher at Columbia College and the Artistic Director at Second City Chicago. I took every improve class I could with Marty because he was such an amazing and inspiring person. He genuinely cared and his approach to imrpov was to create as safe a place as possible for the performer. It was a true joy to be instructed by him and his passion for the art form was contagious.

I wrote down in my notebook at the start of my second class with Marty a few things that I noticed he had said at the start of the previous class I took with him as well. Marty said many memorable things, but a couple of things he said have stuck with me to this day.

"You do not have the right to feel inadequate."
"You are pure potential."

Wednesday, August 28, 2013

My Dream



Last year I attended the Annual Law Summit presented by Autism Speaks. It was my first time in the nation’s capital. There was one place I knew I had to go while I was there... the Lincoln Memorial.

Not only did I want to go because of what Lincoln had accomplished or because of his ties to my home state. I wanted to stand in the place where the greatest speech on equality was ever given. Not just to honor the work and legacy of Dr. King but to invigorate my own personal battle for equality within our healthcare system and to end clear discrimination that autistic people face when it comes to health insurance coverage. 

Wednesday, August 21, 2013

A Spectrum of Similarities




As I read that horrible letter by that horrible person I focused on the words that were written. There were words being used to describe young Max that were vile… disgusting… evil.  Then I started to realize that those words were not being used to describe Max at all. They were venom… nothing more and nothing less.

Sunday, July 21, 2013

Wednesday, March 27, 2013

Build-A-Bear? Build a Foundation.



“If we are to teach real peace in this world, and if we are to carry on a real war against war, we shall have to begin with the children” – Mohandes Ghandi




It has to start somewhere right? Traditionally that has been with the children.

When studies show that nearly half of all autistic teens reporting that they have been the victims of bullying, we have to get the message to kids sooner. Acceptance and tolerance are vital to ending bullying. Those lessons MUST be taught and reinforced at home as well as in the classroom. We must be teaching our kids about the power of love and leading by example EVERY day.

In order to do that, there has to be a dialogue. There has to be an open line of communication. Sometimes that can be a challenge. We don’t always know how to talk to kids on their level and the fear of saying the wrong thing can paralyze us into inaction. What we need is a little confidence and some tools, something to break the ice and open up the give and take required in an important conversation.

Saturday, December 22, 2012

Remembering Sandy Hook - Blogging Advent Calendar Day 21



I really didn't want to have to write about the Sandy Hook Elementary shooting. I don’t want to look back. It is too awful and thinking about it gets me very depressed. At the same time I have an observation that is worth sharing. It has taken me a while to sort through the layers of my own feelings so that I could express myself properly, but I think I have hashed it out.

I would like to address the link made by many in the media that the shooter had Asperger's Syndrome and why it is both dangerous and sad. When I mentioned to a co-worker the fears of the autism community that people may draw conclusions that autistic people are violent by nature of their diagnosis, his reply was, “I don’t think you have to worry about that. Most people are smart enough to know that is not the case.”

Wednesday, December 5, 2012

Cardboard Box Time Machine - 2012 Blogging Advent Calendar



Looking through my garage, I found several large cardboard boxes. I thought I might put them to good use by making something creative out of them. Back when I was a kid a cardboard box was whatever the imagination could conjure.
 
If I could make a cardboard box into one thing, I think that I would create a time machine. Sure it would be tempting to go back in time and play the winning numbers of that obscenely large Powerball jackpot. I could warn Abraham Lincoln to skip the theater. I could even go back and not select Jamaal Charles with my first round pick of the 2011 fantasy draft.

But if I could go back in time to any point I wanted. I think I would go back to when we first suspected that Bianca was autistic and settle myself down.

Thursday, November 15, 2012

How the Other 87 Live



One of my nephews (grandnephew technically) had a birthday party tonight at one of those bouncy house indoor places today. We didn't feel that it would be wise to take Bianca. Not because the cast on her foot would slow her down any, but because since it does NOT slow her down, it really serves as a dangerous weapon to anybody in her path.

I could just see Bianca jumping like crazy and coming down with her cast on some poor unsuspecting kids face. It would not be pretty.

Tuesday, October 30, 2012

Nataly's Letter




In the wake of Ann Coulter’s unapologetic use of the “R-word” I wanted to share a beautiful letter written by Bianca’s friend Nataly.

Nataly is one of the helpers in Bianca’s dance class. She is an incredibly happy, warm, loving, fun young lady… who just also happens to have Down Syndrome. If you knew Nataly, you would understand that her disability is the least remarkable thing about her.

Here is what Nataly wrote on the Voces de Familia de Indiana Facebook Page, a page that was just started by a few Latino special needs parents in Indiana. First is the original in Spanish, and then I have it translated in English.

Thank you Nataly for being a great role model for ALL kids. You are an inspiration and our family is lucky to know you.

Friday, September 21, 2012

Simple Words (Guest Blog)




The other night as I was laying in bed my R2D2 message indicator went off telling me I had an email... yes I am that big of a nerd. When I checked the email I found a message from a fellow autism dad, board member and friend who was clearly hurt and angry. His son was upset, his wife was upset and being the caliber of man that Dan is... he was upset as well.

He needed to vent. So as I had done long ago he turned to writing. He let it all out and worked through anger. Then he did the most important part... he shared it.

Sunday, July 8, 2012

50 Cent: Apology Accepted



@50Cent has now apologized for the offending tweets that he made regarding autism and special needs children. I think it is our responsibility as those that criticized his comments to work just as diligently to let people know that he has apologized. Too often in these situations, it is the bad that gets spread around like wildfire and the apology gets none of the attention.

Friday, July 6, 2012

My 2 Cent

Copyright SPIN Magazine



With the holidays and an illness in the family, I have not been on top of everything autism as I usually am. It is also the reason for the lack of posts in recent weeks. Yesterday, it was 103 FREAKING DEGREES OUTSIDE… so I kept the kids inside and while they were playing and overloading on games and television… I was surfing and catching up.

The article that caught my eye was that the lovely Holly Robinson Peete wrote an open letter to Curtis “50 Cent” Jackson for having used autism as the basis of an insult in a tweet to somebody that pushed his buttons. Mr. Jackson’s tweet (which has since been deleted at Mrs. Robinson Peete’s request) was:

“@50cent: yeah I saw your pic fool u look autistic. I don’t want no special ed kids on my time line follow some body else."

I will give 50 the benefit of the doubt and say that I don’t believe that he honestly feels this way and that he meant these words in jest. Even if he was joking, it wasn’t a wise choice of words on the part of a guy who makes his living… using wisely chosen words.

Thursday, June 14, 2012

Autism Dads



You are involved.
You are present.
You consider 5 hours of sleep a "good night".
You are patient.
You have become immune to the stares.
You know that you can indeed give more than 100%.
You drive your child around from therapy to therapy.
You walk for your child.
You have mastered the art of remaining calm when things escalate.
You are a fighter.
You are tired.
You give your wife a shoulder to cry on.
You are a mind reader.
You know it is OK to cry.
You know showing emotions doesn’t make you less of a man, but more of one.
You advocate for your child.
You are engaged.
You go out to eat anyway… screw em!
You scour the web for information.
You hurt when your child hurts.
You are scared.
You survive on no sleep.
You somehow manage to be functional at work.
You wish you could fix it.
You accept that you can’t and love your child unconditionally.
You try desperately to communicate with your child.
You change your priorities.
You raise awareness.
You smile.
You are a master at body language.
You are deaf to the whispers.
You shake your head at the injustice of the health insurance companies.
You have been hit, bitten, scratched, and pinched all in the matter of minutes.
You celebrate every milestone like you just won the World Series.
You honor your vows
You educate.
You laugh.
You have perspective.
You cope.
You have your entire belief structure come into question.
You ask, “Why me?”
You ask, “Why not me?”
You know the greatest gifts you can give a child are not presents, but presence.
You want things to be better, but don’t know if you would change a thing.
You love your child so much that you could burst.
You redefine the word “Dad”.
You are everything a man should aspire to be.
You are the father to a child with autism.
You are a hero.


If you are an autism dad and are struggling to find answers, I would like to suggest a few good places to go where you can read about the trials and tribulations as well as thoughts and ideas of other dads with kids on the spectrum. These are just a few that come to mind of the top of my head, if you know of others, please post them in the comments below.


Happy Father’s Day boys!

Ancora Impartial
Autism Daddy

If you have not already, please take time to watch my videos, "Fixing" Autism and Autism Awareness with Nichole337 and share them with your friends.



To keep up to date with everying in Lou's Land, please subscribe to my blog. "Like" Lou's Land on Facebook and follow Lou's Land on Twitter

Saturday, April 14, 2012

The Conversation: Part 1


(Just a quick note… the conversation is paraphrased and not verbatim.)
It had to happen someday. I was hoping that it would be much later on, but I suppose we were just postponing the inevitable. We have to do this all over in a few years anyway, so I guess we might as well get on with it and hope for the best.

I have thought about it many times. I have had the conversation in my head more times than I can count. I planned well in advance because I knew at some point in her young life, Sofie was going to have to understand why Bianca is the way she is, she was going to have questions and it was only a matter of time before they came up and we had to explain autism.

Sunday, November 13, 2011

Greatest Birthday Gift... EVER.

Since I can remember, I wanted to be a dad.

Most kids could tell you they wanted to be a baseball player, a veterinarian, a ballerina, a fire fighter or some other career goal. I had those too. Mainly stand-up comedian, SNL actor or radio personality were the things I wanted to do more than anything. Somehow I landed in TV, and I feel fortunate enough to never feel like I go to a “JOB”. However, professional aspirations aside, more than anything in life… I wanted to be a dad.

That opportunity finally happened on November 3rd, 2005. Born exactly on her due date, my beautiful Bianca came into the world… on my 34th birthday. When asked, “What was the greatest birthday present you have ever received?” most people have to think about it a little. Not me. Not only was Bianca the greatest gift I have ever received in my life, she continues to give and enrich it by teaching me to be a better man, husband and father every day we spend together.

Sunday, May 29, 2011

A Very Special Friend.

In 1981 we were broke. I mean poor. Government subsidized housing poor. My parents had decided in 1979 that we were going to pack up and move from the north side of Chicago to my dad’s home country of Guatemala. Unfortunately, shortly after we moved to Guatemala City the country fell deep into a civil war and rebellion. Feeling it was no longer safe for his American wife and mixed child, dad sent mom and me back to the States while he stayed behind to tie up loose ends. We lived with my cousins for a while before settling in to the Timberview Apartments.

The whole experience was pretty traumatic and I found myself in Mahomet, Illinois which could not be more different than my Chicago stomping ground of Edgewater or the third world flavor of Guatemala. The air was clean and there were open fields and forests for me to play in. The only real problem was that after living at the apartment complex for a while, I was low on the friend count.

Being a new kid on the block is never fun. You worry if you will fit in and whether or not the kids are going to like you. I made a couple of friends, but was always on the lookout for more when I came across somebody playing whiffle ball and calling the game as he pitched the ball to himself, “Reggie Jackson comes up to the plate. It is a 2-2 count with bases loaded… the pitch” SMACK!!!! I had never seen a whiffle ball get crushed like that. He actually hit it OVER the roof of a two-story apartment complex. Now I grew up a baseball fan and I knew a good player when I saw one, and this guy was GOOD. As he rounded “third” and trotted to “home” he eyed me and asked, “You wanna play?”

“Sure.” I replied
“OK, you pitch.” He said as he picked up his yellow piece of plastic lumber.
“Alright.”

After looking for a while in some trees for the ball, we finally came across it. I took my place on what I believed to be an appropriate distance for the pitching mound and got into my stretch. My opponent cocked the bat back behind his head swinging it back and forth like Gary Sheffield. I had a pretty good arm, and felt confident in my fast ball. I started my windup and threw a heater that whistled that hollow, high-pitched whir that only a properly thrown whiffle ball can make… POW.

I had never experienced a “come-backer” before. There was no time for me to react. No sooner had the ball left my hand that I was laid out on the ground. It was a Charlie Brown moment except that my shoes and socks were still on. My opponent seemed undaunted as he ran as fast as he could for what appeared to be an inside the park homerun.
“You OK?” he said after his home run celebration.
“Yeah… I guess. Man, you hit that ball harder than anybody I have ever seen hit a ball.” I replied as I brushed myself off and inspected my shoulder for welts, bruising or loss of use.
“My name’s Kevin. What’s your name?”
“Luis”
“I love to play baseball, how about you?”
“Yeah, I love playing baseball.”
“I like comic books too, do you like comic books? Batman and Robin are my favorite. I watch the TV show all the time.”
“Yeah, I like comics too. Spiderman is my favorite.”
“Do you wanna play superheroes after we get done playing baseball?”
“Sounds good to me! How about I bat this time?”

And so began one of the most important friendships of my life. I didn’t realize it at the time, but my friendship with Kevin would prepare me for one of the biggest challenges in my life.

My parents had taught me well. They drilled into my head that you respect EVERYBODY, and you treat them as your equal. That is what I did with Kevin. We played ball, we battled “evil-doers” as Kev was fond of saying as if he were narrating the 1960’s Batman TV show, and we explored deep dark jungles and built complex fortresses. We became good friends, close friends.

As I got to know more kids, I would always introduce them to Kevin. If we played sports, I was smart enough to know I wanted Kevin on my team. He was taller than most of us and had a great hook shot to go along with his hitting power. To the credit of the other kids, Kevin was always accepted which as I got older always impressed me. Kids can be cruel about others that are different, and Kevin (although I never thought much of it at the time) was different… he had Down Syndrome.

When you are a kid, three years seems like an eternity. But for those few years at the Timberview Apartments, Kevin and I probably played together almost every day. Unfortunately however, as I aged sadness and a reality set in for me as Kevin’s being “different” started to affect our friendship. It wasn’t that I no longer liked Kevin or enjoyed his company; it was just that I was growing up and my interests were changing but Kev was still… well… Kev. He wanted to play Batman and Robin, and do the things that were fun and adventurous for me at 11, but not so much for me at 14. Add to it the fact that I had to grow up pretty fast when my mom was diagnosed with ovarian cancer, and the rift between what Kevin and I found entertaining grew.

I often thought that life was cruel. Not because Kevin had Down Syndrome, because he was the happiest, sweetest guy I have ever known. What was cruel was that I couldn’t maintain that same level of wonder about the world, the naiveté that would allow me to still play Batman and Robin at the age of 14. Unfortunately for Kevin, there is a huge leap in development for kids between 11 and 14 years of age, and Kevin (who was in his mid-twenties) wasn’t making the leap with me.

We stayed friendly once his family moved away from the Timberview Apartments. My family moved not long after. Kevin’s saint of a mother Esther would bring Kevin over to our house to visit, and we would reminisce about the good old days. Kevin’s eyes would always sparkle when he asked me if I remembered this adventure or that game we played. I am certain that had I been up for it, Kev would have gladly gone outside and picked up right where we left off. The visits became less frequent and then I went away to college, and I believe Kevin and his mom moved out of the area.

Fast forward some 20+ years and we discover that my oldest daughter has Autism Spectrum Disorder. Although Autism is a different condition altogether from Down Syndrome, I feel like my friendship with Kevin prepared me for raising Bianca. I am not afraid of people that are different. I know that they have wonderful things to offer the world, and I am perfectly aware of many of the challenges that can arise when dealing with these beautiful people. I even feel like life is repeating itself because a couple of Bianca’s friends from dance class have Down Syndrome.

I still think of Kevin almost every day. My memories of the times that we shared are still vivid in my mind and I hope they never fade. They were good times, GREAT times. My family was as poor as we would ever be, and yet I was so happy.

Any weather was good weather for baseball with Kevin

Tough times are never so tough when you have a good friend to play ball with.





If you have not already, please take time to watch my videos, "Fixing" Autism and Autism Awareness with Nichole337 and share them with your friends.



To keep up to date with everying in Lou's Land, please subscribe to my blog. "Like" Lou's Land on Facebook and follow Lou's Land on Twitter